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    Thursday
    Jan162014

    January 2014 News Roundup

    It’s 2014 and we’re kicking off the new year with a fresh National Healthcare Decisions Day (NHDD) news roundup of recent articles relevant to advance care planning. NHDD plans to collect and organize interesting articles each month for our community of people interested in issues related to discussing and documenting informed healthcare decisions.

    Recent news cycles remind us about the importance of this NHDD community and it’s dedication to raising awareness about advance care planning (ACP). Just this week, Hillary Young, Medical Guardian’s Communications Manager published a piece on the Huffington post urging people to think about end-of-life care titled “Are You Thinking About End-of-Life Care? You Should Be.” Young’s piece is a thoughtful examination of the awareness levels of people throughout the country about the importance of advance care planning and advance care directives. Young references a “new study published in the American Journal of Preventative Medicine” and breaks down the disparities of awareness across the United States. Some of the facts she highlights are alarming, though we would argue, important to examine in building the much needed momentum for the ACP movement.

    On Sunday, CNN introduced "Dying: What no one wants to talk about" by Jacque Wilson. This piece was spurred by the tragic brain death of 13-year-old Jahi McMath following a routine tonsillectomy. The news outlet explores the sometimes awkward, but necessary conversations and virtues of advanced cared planning in preventing emotional and heart wrenching decisions for families. CNN is also covering a brain death case in Texas “Family seeks to take pregnant brain-dead Texas woman off ventilator,” where Marlise Munoz’s family has had disagreements since she suffered a pulmonary embolism. These stories have sparked a difficult conversation and debate about advance directives that will likely carry-on long after the news cycle has ended.


    Quick look at articles from the past month:

    Matters of life and death: Making decisions now will help loved ones in future

    http://www.freep.com/article/20140112/FEATURES01/301110014/Life-and-death-conversations-family


    Are You Thinking About End-Of-Life Care? You Should Be.

    http://www.huffingtonpost.com/hilary-young/are-you-thinking-about-end-of-life-care_b_4590795.html


    Dying: What no one wants to talk about

    http://www.huffingtonpost.com/hilary-young/are-you-thinking-about-end-of-life-care_b_4590795.html


    A great resolution involves pre-planning

    http://www.capitalgazette.com/bowie_bladenews/senior_moments/a-great-resolution-involves-pre-planning/article_d08d26c8-ee84-5ca7-bb76-5cbb111f6d30.html


    No one wants to talk about death, but you need to anyway  

    http://www.latimes.com/opinion/commentary/la-oe-stulberg-advance-healthcare-planning-20131230,0,5263335.story#ixzz2qXakYdqR


    End of Life Planning in Japan

    http://www.theepochtimes.com/n3/421693-end-of-life-planning-in-japan/


    Tips on how to create a living will

    http://www.baxterbulletin.com/article/20131223/NEWS01/312230027/Savvy-Senior-Tips-how-create-living-will?nclick_check=1


    Talk end-of-life care to take the shock out of death

    http://www.rrstar.com/article/20131221/NEWS/131229913/10472/NEWS#ixzz2qXa8GyfE


    Having a say in your health care when it matters most

    http://michronicleonline.com/2013/12/18/having-a-say-in-your-health-care-when-it-matters-most/


    Digitize your advance directives http://thehill.com/opinion/op-ed/193444-digitize-your-own-advanced-care-plan


    Aging Well: Time is now for end-of-life planning

    http://www.timesonline.com/healthandwellness/aging-well-time-is-now-for-end-of-life-planning/article_cad15866-2f4e-5998-8284-8e879d3d10c4.html


    Holidays a good time to have 'the talk' about end-of-life planning

    http://www.delawareonline.com/article/20131217/HEALTH/312170017/Holidays-good-time-talk-about-end-life-planning?nclick_check=1


    This holiday season, give the gift of planning

    http://www.mysuncoast.com/health/kagan/this-holiday-season-give-the-gift-of-planning/article_9efe22c4-66a3-11e3-8fef-001a4bcf6878.html


    Editorial: Medicare-funded end-of-life planning benefits everyone

    http://www.spokesman.com/stories/2013/dec/17/editorial-medicare-funded-end-of-life-planning/


    Lack of Awareness Continues to Be a Barrier for Americans in Making Medical Wishes Known

    http://www.digitaljournal.com/pr/1642392#ixzz2qXYcH7Uy


    Researchers investigate new way to improve end of life planning

    http://phys.org/wire-news/148371097/researchers-investigate-new-way-to-improve-end-of-life-planning.html


    Monday
    Apr082013

    One Share At A Time

    With a little more than a week until NHDD we've started to get excited about our annual day dedicated to inspire, educate and empower the public and providers about the importance of advance care planning.

    For the past week we've been publishing quick facts and quotes about advance care planning on Facebook and we thought we'd post a quick reminder that using the share button on Facebook is a great way to amplify the reach of good information about advance care planning. 

    Looking forward to advocating with you over the next couple of weeks!

    - The NHDD Team

    Thursday
    Nov222012

    Engage With Grace

    Once again, we are joining the Engage With Grace thisThanksgiving weekend with a blog rally to encourage everyone to have end-of-life conversations with their loved ones. People are invited to share this post written by the Engage with Grace team (or some version of it that speaks to you) with your friends, family and community. Happy Thanksgiving.


    One of our favorite things we ever heard Steve Jobs say is… ‘If you live each day as if it was your last, someday you’ll most certainly be right.’

    We love it for three reasons:

    1)      It reminds all of us that living with intention is one of the most important things we can do.

    2)      It reminds all of us that one day will be our last.

    3)      It’s a great example of how Steve Jobs just made most things (even things about death – even things he was quoting) sound better.

    Most of us do pretty well with the living with intention part – but the dying thing? Not so much.

    And maybe that doesn’t bother us so much as individuals because heck, we’re not going to die anyway!! That’s one of those things that happens to other people….

     

    Click to read more ...

    Tuesday
    Oct162012

    6 Months!

    You may have noticed we've been a little quiet lately on the blog. We're gathering some fresh resources for NHDD 2013, if you have ideas for the blog this year, please don't hesitate to be in touch with us!

    Monday
    Apr162012

    Fulfilling

     

    Can discussing advance directives with family actually be fulfilling? Brad Stuart M.D., Chief Medical Officer for Sutter Care at Home may be speaking from the heart about the importance of goals of care discussions, but as a leader of the Advanced Illness Management program, there is some pretty incredible research showing the benefits of advance care planning for healthcare truly delivered around the wishes of each individual patient.

    Click to read more ...