A National Journal event today, supported by the Regence Foundation Living Well At the End of Life can be viewed here.
The event is introduced as "the first in what we think is a ground breaking series of three events and polls around palliative care."
- Amazing! We all need to talk more about palliative care to ensure more people can be empowered to ask for it from the point of a diagnosis with a serious illness.
- Wait! Why is the event titled Living Well At the End of Life?
- Palliative Care is not limited to care at the end of life
- It is appropriate to try for a cure while having integrative palliative care
- The hope is to include Palliative Care Specialists to manage pain and symptoms and facilitate patient-centered decision making and care at every part of a patient's experience with serious illness
- Hospice specializes in, and is exclusively for end-of-life care
This is featured on the NHDD blog because often advance care planning is described as decisions for end of life. Just as palliative care is helpful to patients and families receiving end of life care, it is not exclusive to when we experience serious illness. So, while advance care planning does address healthcare decisions for end-of-life care, it's important to distinguish that the decisions are best addressed initially as we enter adulthood which Nathan Kottkamp discusses here in a post about the history of NHDD.
Lastly, the title of the post... well, I couldn't decide if this was about hospice, palliative care or advance care planning. It's really about all of it, and since I only made it to minute 1:32 on National Journal event, I realize that all of these distinguishing factors may be discussed even though I hadn't made it that far into the video stream. So the title's incomplete because it's all about the conversation, right? Hopefully our community can watch the session from today and continue to talk about all of these important factors.